Neurofibromatosis, or NF, occurs in 1 of every 3,000 people, affecting more than 2.5 million people around the world.
So why don’t more people know about it? Because there is no one way to define NF.
Just like there is no one way to define a person living with NF.
Patients with visible signs of NF struggle to be seen as more than just their NF, while patients whose NF is invisible struggle to make others understand.